Welcome to the website of the
Hereditary TTP Registry
Hereditary Thrombotic Thrombocytopenic Purpura (hTTP) or Upshaw-Schulman Syndrome (USS) is an ultra-rare and complex blood coagulation disease
read more about hereditary TTP
At present, the Hereditary TTP Registry has enrolled 231 participants from 18 different countries
click here to know which sites are involved
«The fact that the medical research of a son of the Mississippi Delta, born in Louise, MS in 1929, is being continued by a team of researchers all over the world, still excites me!»

Cristie Upshaw Travis
Daughter of Dr. Jefferson D. Upshaw
The Hereditary TTP Registry participated in the first-in-human study evaluating a recombinant human ADAMTS13 as therapeutic option in the treatment of congenital TTP
click here to read more about the study

Best abstract at the GTH 2018 in Vienna, Austria

26 February 2018

(from left Monica Schaller, Silvan Heeb, Johanna Kremer Hovinga)

In the category "best abstract", Silvan Heeb presented a study on iTTP from our lab (co-authors: Monica Schaller, Johanna Kremer Hovinga) at the 62nd Annual Meeting Society of Thrombosis and Haemostasis Research in Vienna, Austria. Also the abstract on caplacizumab in patients with acquired TTP (co-author: Johanna Kremer Hovinga) was selected as one of the four best abstracts from a total of the 160 meeting abstracts